Scleroderma treatment
Scleroderma is apparently very rare; however, I do have a client with an arrested form of the disease. Given everything I have read on-line, there is no cure and nothing that has been tried works.
What I find puzzling is the success I am having in mobilizing the skin and underlying muscle tissue. We started with a twisted foot and hammertoes, but now the foot appears very nearly normal. The skin is almost as pliable as that on the unaffected foot.
I contacted a local Scleroderma support group to find out if they would be interested in working with me to see if what I am doing also works on active cases. So far, it has been weeks and no response. In some ways that is more curious than discovering something that appears to work.
What I would like to do is try this technique out on a number of individuals and carefully document the results. If it does work, I would like to write an article describing the technique and train therapists who are interested in helping those suffering from this disease. If the local support group is not interested, how then to proceed?
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2 Responses
May 31st, 2009 at 8:57 pm
Hello,
I am looking for a forum or where to turn to.My scleroderma has affected my healthy teeth.I have had to have several pulled since the connective tissue around them is gone.I am headed towards dentures and am very frustrated.I wonder if anyone has had teeth issue?
June 1st, 2009 at 11:23 am
Hello Sandra,
My first impulse is to ask if you have joined a Scleroderma support group in your area, or checked with the national site? The second one is to ask if you have considered seeing someone trained in lymphatic drainage. While the tissue is different around the gums, the gentle movement of the tissue may improve the blood and lymph flow.
When I gave a presentation to the Sacramento Scleroderma Support Group the members graciously permitted me the opportunity to apply lymphatic drainage work combined with muscle release work to their unique expressions of the disease. Everyone experienced improvement ranging from sudden absence of long term pain to improved range of motion. I do not know if lymphatic work will help you, but it will certainly not harm you.
You can find a certified lymphatic practitioner near you by contacting Klosetraining.com or Upledger.com. Good luck.
Love and Light,
Diane
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